first call for projects for the Health Data Hub

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The Health Data Hub is launching a first call for projects aimed at selecting the first innovative initiatives in the use of health data that are of public interest. Presentation.

Following the conclusion of a prefiguration mission, Agnès Buzyn announced in October 2018 the creation of the Health Data Hub to make France a leader in the use of health data.

During the delivery of the Villani report, the President of the Republic announced that health would be one of the priority sectors for the development of artificial intelligence. On May 16, Agnès Buzyn launched a prefiguration mission to create a "Health Data Hub" and to expand the national health data system.

Agnès Buzyn has entrusted Jean-Marc Aubert, director of DREES, with the mission of setting up this Health Data Hub by the first quarter of 2019. This initiative should make France a leader in the use of health data, in the service of the common good, in respect of the rights of patients and in total transparency with civil society.

Concretely, the "Health Data Hub" will take the form of a one-stop shop, secure with the aim of enabling the sharing of health data while respecting patients' rights and ensuring transparency with civil society. It will pool technological and human resources and constitute a tool for promoting innovation to make France a leader in health data.

Nearly a hundred concrete ideas to put the national heritage of health data at the service of research, health professionals, citizens, start-ups, medtechs and public authorities have been proposed.

Health data funded by national solidarity has thus been recognized as part of a common heritage that must be fully put at the service of the greatest number while respecting the ethics and fundamental rights of fellow citizens.

The missions of the Health Data Hub

The Health Data Hub is based on 6 main missions:

Provision : data sharing platform, it allows the gathering of data sources necessary for work aimed at improving the quality of care.

Transparency and security : the shared data are not directly identifying and their access is regulated. An ethical and scientific committee, as well as the CNIL, ensure reasoned access to data and citizens are informed. The platform is highly secure.

Data quality : the use of health data is essential to the development of an increasingly personalized medicine and to the improvement of the healthcare system, provided that the quality of the data and the relevance of the interpretations are guaranteed.

Single window : a clearly identified entry point is essential to better understand the nature and conditions of access to the health databases currently available for research.

Pooling technologies and expertise : Analyzing data and making it available under high security conditions is demanding and costly. The skills required to collect and use this data are sophisticated, rare and expensive.

Promote innovation : known for its medical and mathematical excellence, France is an ideal candidate to become a leader in the health data ecosystem, provided that it develops an environment in which innovations can thrive.

Launch of the first call for projects

The Health Data Hub (HDH) is launching a call for projects to select the first innovative initiatives in the use of health data that are of public interest.

It will provide pooled human and technological resources to selected project leaders. The construction and operation of the HDH will be based on sharing and capitalizing on the work undertaken. It will be a tool for promoting innovation to make France a leader in health data.

Particularly sought after are projects whose design phase is advanced but whose realization expressly requires the help of the Hub to access health data or to process it. Priority will be given to projects that will contribute to the creation of the data catalog and whose stakeholders will be willing to share the tools and knowledge created with the community.

The objectives of the call for projects:

  • Support innovative uses of health data: the objective is to support innovative projects serving research, patients, health professionals and the health system.

  • Participate in the construction and development of the "Health Data Hub": these projects will allow the Health Data Hub to Review and industrialize its service offer as well as enrich its catalog of shared data and algorithms.

  • Demonstrate the value of data through rapid results: projects must allow rapid results, capable of demonstrating the value of data and the value of sharing it.

Eligible themes are research, patient information, support for healthcare professionals or improvement of the healthcare system, for example:

The call for projects targets in priority projects meeting different criteria:

  • Project maturity : the use case must be precise, concrete and realistic. The project team must already be formed and engaged.

  • Innovative use of health data : the project must offer an innovative approach to collecting or processing data (in particular artificial intelligence).

  • Contribution to the constitution of the Hub data catalog : the project must contribute to the identification of data sources with high potential for re-use or to the collection, documentation, standardization and quality improvement of new major data sources. The use of international standards would be a plus.

  • Significant potential benefits available quickly : the project must be feasible under current state of the art conditions and be able to quickly demonstrate (6 months to 1 year) benefits on the improvement of care or the health system.

  • Contribution to the sharing of data, tools and knowledge : the project must provide, while respecting intellectual and industrial property, the provision of documentation, tools, algorithms created thanks to the assistance of the Hub and which can be used by all of its user community

The Hub will support the projects selected at all stages of their implementation by providing suitable technical, human and financial resources. Financial aid is not intended to allocate a general grant to projects but to cover the possible cost of access to data and the development of shared bricks. It will be sized to the needs and will relate to a precise and documented perimeter.

Calendar of the call for projects:

Deadline for filing: March 9, 2019

Source: DREES

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