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- The Cnil digital innovation laboratory looks at health data
The Cnil digital innovation laboratory looks at health data
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This dossier, entitled "Data in transition: health challenges 2020", "highlights three tensions representative of the ambivalence posed by the announced transition of medicine, which is above all an ongoing evolution of the relationship between private life, our data to our health, "writes the Linc in the introduction.
Technologies for women’s health ("femtech") herald "potential for improving uterine health care", but pose "risks of commodification of the intimate," he said.
The Linc calls for "digital vigilance for our personal data" and "algorithmic vigilance for our health".
On the subject of biomedical research, the Linc recalls that "the methods of involving participants are struggling to follow the evolution of research capacities" enabled by access to massive data.
He returns to the challenges posed by the GDPR and develops the example of the FinnGen project, a "national network of biobanks to collect and integrate the genomic data of 500,000 Finns in the national health register by 2023" and the ethical framework that has been posed.
Finally, the Linc warns that "if technological innovations to support dependent elderly people always promise more empowerment, some devices pose risks of isolation and intrusion into the privacy of men and women of the elderly".
The challenge is that of an "eternal compromise between respect for private life and the need for security".
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