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Unicancer launches the "My health data" site
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For greater transparency with patients on the use of health data, Unicancer launches the "My Health Data" website. Discovery.
Unicancer is a French hospital network 100% dedicated to the fight against cancer, which brings together the 18 Cancer Control Centers (PBC).
To allow patients treated within the network or included in clinical trials promoted by Unicancer or a PBC, to be informed about the use of personal data collected in the context of their care or their participation in a clinical trial, Unicancer announced the launch of its dynamic information site mesdonnees.unicancer.com.
Patients treated in the PBC or participating in a clinical trial promoted by Unicancer or a PBC are informed of the possibility of using it, their data and their biological samples for research purposes. However, it is not always possible to anticipate all the research possibilities, especially when new partner organizations are integrated.
This is why Unicancer has developed this platform in order to provide patients with additional information, simply and quickly, when the information initially delivered to them becomes incomplete.
The CNIL, in its Reference Method 004 dedicated to research on data and biological samples, provides for the possibility for research organizations to create a unique information support to which the patient can refer if he wishes to learn about subsequent uses of data concerning him.
" Thanks to the mesdonnees.unicancer.com site, we guarantee the compliance of Unicancer research with the regulations and can provide patients with regular updates on the use of their personal data. "Said Jean-Yves Blay, President of Unicancer.
Source: Unicancer
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